American Public Health Association
Disability Section Minutes
July 7, 2011
Council members present: Anthony Cahill (Accessibility Co-Chair), Stephen French Gilson (Chair), Catherine Leigh Graham (Accessibility Co-Chair), Willi Horner-Johnson (Treasurer), H. Stephen Kaye (Chair Elect), Barbara Kornblau (Policy chair), Suzanne McDermott (Governing Council Representative), Dot Nary (Membership Chair), Jennifer Rowland (Awards Chair), Meg Ann Traci (Secretary), Vijay Vasudevan (Student Liaison) and Kiyoshi Yamaki (Program Chair).
Council members not present: Vince Campbell (Policy Chair), Roberta S. Carlin (Communications Chair), Gloria Krahn (Governing Council Representative), and James H. Rimmer (Past Chair/Elections Chair).
Opening: Stephen Gilson opened the conference call meeting at (EST) prompting roll call.
June minutes were approved as corrected. Review and approval of the May minutes was postponed to the next meeting.
Discussion of Dot Nary’s and Vijay Vasudeven’s participation in the APHA Midyear Meeting on health care reform was postponed to the next meeting. Stephen asked Dot and Vijay to submit a summary to Roberta for the Disability Section newsletter.
Policy, Vince Campbell and Barbara Kornblau
There was unanimous consensus among councilors to move forward with two letters to APHA leadership advocating for: 1) APHA’s opposition to Medicaid cuts; and 2) continued support for NCBDDD programs and activities (see addendum). You can email Barbara Kornblau your suggested changes. After revisions, Stephen Gilson, as chair acting on behalf of the Executive Council, will forward these letters to APHA leadership.
Vince and Barbara are considering how the Disability Section and its Executive Council should provide input on the proposed questions operationalizing disability as part of the data collection requirements in Section 4302 of the Affordable Care Act (ACA) (see addendum). Barbara is working with other constituent groups and stakeholders to gather more information. Prior to this meeting, Vince emailed councilors information (copied below) about the proposed questions. Please review this information and provide your input to Vince.
[Considerations for the proposed disability items emailed by Barbara Kornblau, 6/30/2011 at and from Vince Campbell, 7/7/2011, ]
Public comment period is open until 8/1/11 for Sec. 4302 of the Affordable Care Act (http://minorityhealth.hhs.gov/section4302/ ) – has to do with people with disabilities as a population group experiencing disparities and data collection, analysis and reporting. Comment on the 6 questions proposed to assess disability in federal surveys.
• The questions were considered and approved by the HHS Data Council (positive);
• It will be good to have a standard set of questions to allow comparisons across surveys (positive);
• The questions come from the US Census American Community Survey and have been subjected to considerable cognitive testing and validation, references
http://www.google.com/url?sa=t&source=web&cd=1&ved=0CBsQFjAA&url=http%3A%2F%2Fwww.census.gov%2Facs%2Fwww%2FDownloads%2Fmethodology%2Fcontent_test%2FP4_Disability.pdf&ei=vbAVTv7RGfKx0AHpoolT&usg=AFQjCNFj7hzPtEiB0ENuomsg51ttn64Mtw (positive) ;
• It will reduce the prevalence of disability substantially by using the qualifier ‘serious’ limitation – prevalence lowered from ~ 15% in 2007 using the old set of questions that employed the phrase ‘any difficulty’ to about 12% in 2009 (negative);
• The Census Bureau changed the disability questions or the sampling frame at least three times in the past several years (negative);
• The ‘Mental’ question conflates cognitive limitations with behavioral/ emotional/ psychiatric disabilities (major negative);
• There are too many questions to reasonably get into the BRFSS (another MAJOR negative).
· DD, including autism is left out.
Barbara mentioned that the National Partnership for Action to End Health Disparities is establishing regional health equity advisory committees and there is a call for nominations to serve on these committees (see addendum).
Chair’s Forum, Steve Kaye
For the 2011 Chair’s Forum, Steve and Stephen will consider suggestions from councilors of speakers for the topic: What don’t we know in disability research. Councilors discussed different types of speakers such as experts not normally involved in disability research, federal agency representatives, journal editors, authors of recent systematic reviews. Councilors should send Steve names of speakers they recommend for the Chair’s Forum. Steve and Stephen will develop a panel of presenters and make invitations.
Awards, Jennifer Rowland
The Awards Committee has selected and contacted award winners. Information about the winners has been submitted for inclusion in the program for the 2011 APHA Annual Meetings in Washington, D.C. Jennifer asked if there were individuals or entities within APHA that the Disability Section might want to recognize for their work to advance the goals of the Disability Section. Please let Jennifer know of any recommendations.
Students, Vijay Vasudeven
Vijay reported that he was working with other student members to plan the Student Mentoring Session for the APHA Annual Meetings () and has drafted a letter to send to potential mentors. Vijay and other students are designing a student needs assessment. Vijay noted that social networking information technology is one strategy they are considering to increase student response rates. Vijay listed potential topic areas for the needs assessment: What draws to students to join APHA and the Disability Section? What do students want from their Disability Section memberships? What do students want from APHA?
Program, Kiyoshi Yamaki
Kiyoshi has finalized the scheduling for the three group presentations at the APHA Annual Meetings in Washington, D.C.
Membership, Dot Nary
Dot reported that she had 7,000 copies of the new brochure printed and will be mailing copies to all members and old members asking them to use the brochures to recruit a colleague or a student. Dot asked for suggestions of other venues to place the brochures. Stephen will send Dot guidelines for making the electronic version of the brochure accessible.
Treasurer, Willi Horner-Johnson
Willi reported that she had closed accounts for the 2010 fiscal year using some funds to buy new promotion items (black yoyos with the Disability Section logo). We do have another year of level CDC funding although funding for future years is ambiguous. There are enough funds to provide student scholarships this years; Stephen will ask George how AUCD can help with the scholarship process this year.
Accessibility, Catherine Graham and Tony Cahill
Catherine is working with Anna and APHA to improve the information being provided on accessible housing for the APHA Annual Meetings in Washington, D.C. At least one Disability Section member still was having problems reserving an accessible room after a week of attempts. Anna is suggesting that the early call for housing (emails sent to Disability Section member hours prior to the broad email alert) be discontinued next year because the new email systems distributes the housing alert only a few hours before the membership-wide email is distributed. Instead APHA will provide the same information to everyone at the same time, while also including information about guaranteed ADA rooms in the email and on the APHA Housing web pages with links to other accessibility information for the Annual Meetings.
Tony suggested that these issues be put on the agenda for the meeting with APHA leadership later this fall within a broader topic of accessible planning rather than individual issues such as accessible materials, accessible housing, etc. Focusing on what accessible planning means might increase the sense of obligation and types of investments within APHA.
Meg asked whether Disability Section members might develop a presentation using photovoice (http://en.wikipedia.org/wiki/Photovoice ) that would depict facilitators and barriers experienced at the APHA Annual Meetings. Catherine reflected that such a presentation could educate members within and outside of the Disability Section. Stephen suggested that a presentation might be helpful at the meeting with APHA leadership this fall. Catherine proposed an email distribution to Disability Section members asking them to take photos of barriers and facilitators at the APHA Annual Meetings in Washington, D.C. Suzanne and Catherine also will review APHA’s policy on accessible meetings and suggest next steps.
Governing Council, Suzanne McDermott
Suzanne participated in the midyear APHA Governing Council call, but had nothing to report that was pertinent to the Disability Section.
Stephen Gilson closed the meeting at (EST). The next Disability Section Council meeting will be held August 4, 2011 at (EST).
[Emailed by Barbara Kornblau, 6/29/2011, ]
This is what will be used for data collection for disabilities from the report released today by the Office of Minority Health on data collection and compliance with Section 4302 of the Affordable Care Act. Please share with your contacts. Thanks. Barbara (Kornblau)
The six item set of questions used by on ACS and other major federal surveys to characterize functional disability is proposed as the minimum standard for collecting population survey data on disability. The question set was developed by a federal interagency committee and reflects how disability is conceptualized consistent with the International Classification of Functioning, Disability, and Health. The question set went through several rounds of cognitive testing and has been adopted in most major federal data collection systems. The data standard can be viewed at http://minorityhealth.hhs.gov/templates/content.aspx?lvl=2&lvlid=208&id=9000#Disability
V. Disability Status
Proposed Data Standard for Disability Status
- Are you deaf or do you have serious difficulty hearing?
- Are you blind or do you have serious difficulty seeing, even when wearing glasses?
- Because of a physical, mental, or emotional condition, do you have serious difficulty concentrating, remembering, or making decisions? (5 years old or older)
- Do you have serious difficulty walking or climbing stairs? (5 years old or older)
- Do you have difficulty dressing or bathing? (5 years old or older)
- Because of a physical, mental, or emotional condition, do you have difficulty doing errands alone such as visiting a doctor’s office or shopping? (15 years older or older)
National Partnership for Action to End Health Disparities
Establishment of Regional Health Equity Councils
Regional Health Equity Councils
· Regional Health Equity Councils
· Nominating Procedures
· Review and Selection
· For Further Information
Nominations will be accepted until July 18.
Nominations are being accepted for membership on Regional Health Equity Councils that are being established by the National Partnership for Action to End Health Disparities (NPA).
The NPA is a public-private initiative that seeks to mobilize a nationwide, comprehensive, community-driven, and sustained approach to combating health disparities and to move the nation toward achieving health equity.
Regional Health Equity Councils
Ten councils, each of which will cover the same geographical territory as an HHS region, will be established. Councils will:
1. Serve as leaders and catalysts for strengthening health equity actions within a region in response to the NPA's National Stakeholder Strategy for Achieving Health Equity; and
2. Enhance collaboration between health equity stakeholders in the region, including public-private partnerships, alignment between initiatives and programs, and leveraging of assets to more effectively accomplish health disparity reduction goals.
Each Council will include up to 35 members who possess demonstrated leadership and experience in addressing health disparity elimination and the social determinants of health. Councils will not serve as advisors to the Office of Minority Health (OMH), the U.S. Department of Health and Human Services (HHS), the Federal Government, or NPA partners.
Nominees should possess significant professional leadership skills, experience and knowledge regarding:
1. Health disparities faced by racial and ethnic minorities, geographic populations, low socioeconomic status populations, low literacy populations, individuals with disabilities, and LGBT populations.
2. Local, state, regional, and/or national plans and/or programs focused on improving the health of all populations, eliminating health disparities, and/or achieving health equity.
3. Public, non-profit, and/or private sector actions to improve health system (physical health, behavioral health, oral health), human services, public health, environmental health, community health, education, housing, transportation, economic, and community development policies and programs that contribute to health equity.
4. Leadership practices for improving collaborative action on issues affecting health and well-being and/or
5. multi-sectoral and multi-level collaboration and action.
Nominees are being sought from the public, non-profit, and business sectors and all fields (e.g., public health, human services, research, education, transportation, etc.).
Only one nomination will be accepted from each nominator. A qualified individual may self-nominate or nominate someone else who possesses the required leadership skills, knowledge, and experience. Nominees will be considered for the regional health equity council within the geographic region where they reside.
Nominations will be accepted until Pacific Time, July 18, 2011. Nominations must include name, title, and contact information (address, telephone, email address) of both the nominee and nominator. If you would like to nominate someone or self-nominate, please send your nomination by email to RHECnomination@minorityhealth.hhs.gov.
Review and Selection
The HHS Office of Minority Health will coordinate review of nominations for initial appointments to regional health equity councils in consultation with a subcommittee of the Federal Interagency Health Equity Team. Subsequently, it is expected that operating procedures will be established by each regional health equity council.
As a result on nominations made in response to this notice, approximately 160 Council members will be selected. Approximately 190 members are being considered for selection as a result of recommendations already submitted by: national NPA partners and collaborators; Federal Interagency Health Equity Team agency representatives; HHS Regional Offices; and State Offices of Minority Health, Health Equity, and/or Multicultural Health. All members will be informed of their selection by the HHS Office of Minority Health.
For Further Information
Questions may be directed to Sophie Tan or Christine Charles c/o Office of Minority Health Resource Center at 1-855-JOIN-NPA or RHECnomination@minorityhealth.hhs.gov .
APHA, public health and people with disabilities
May 10, 2011
1. Clarification of meeting goals for all in attendance
2. Discussion: Role of APHA in public health involving people with disabilities
a. People with disabilities as public health students and professionals
i. People with disabilities who choose public health as a career
ii. Public health professionals/students who acquire/develop a disability
b. Public health practice with people with disabilities
c. Public health research with people with disabilities
3. Items to be discussed from Disability Section
a. Clarification from all in attendance about the expectations, roles, and functions of the Disability Section
b. Executive Council of Disability Section views of role and function of the Section
i. Focus on the advancement of Public Health principles, scholarship and research that reciprocally are influential with disability;
ii. Policies and practices that assure and cover costs by APHA ( not Dis section) of equality of access to all resources for section members and all other members
4. Film festival etc.
iii. Clarification that access is broader than disability section members and concerns
c. Call for plan and timeline developed by APHA to assure and monitor access that does not fall to Disability Section.
4. Items to be discussed from APHA
a. Future of Dis Section
i. Plans for programming
ii. As a newer Section, where do you want your Section to go? Goals?
b. Greater involvement with APHA boards and committees
i. Spot on programming committee
ii. How can members of the Section participate to the fullest extent? Right now have members only on Action Board and Membership.
iii. DIS representative on EHOC
c. APHA – capacity and resources